Williams Syndrome (or Williams-Beuren Syndrome) is a rare genetic disorder that is caused by the deletion of genetic material on chromosome 7. It affects approximately 1 in 10000 Australians. There are many symptoms that vary from person to person, but they each share a very social and friendly disposition and have a deep affinity with music. There are different joys and challenges for each persona and family; some individuals are highly capable, living very independent lives; others need more assistance. In Australia, we have access to some very useful early intervention and support services which can make a big difference to helping our WS members with their development, education and health.The syndrome was first described and named in the 1960s but more is being understood and more information available about Williams Syndrome every year.
More information about Williams Syndrome
There is a lot of great information available on the Internet about Williams Syndrome.
Better Health Channel
Health Direct
Raising Children Network
Centre For Developmental Disability Health – Monash Health
supports mainstream health services to build their capacity to address the health needs of adults with intellectual and associated developmental disabilities.
supports mainstream health services to build their capacity to address the health needs of adults with intellectual and associated developmental disabilities.
is committed to promoting the interests and well-being of people affected by genetic conditions. The Network is proud to be associated with a wide range of support groups throughout Victoria and Australia as well as peak professional bodies such as Victorian Clinical Genetics Services.
South Australia
NSW
Western Australia
Williams Syndrome Association (USA)
Williams Syndrome Foundation (UK)