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May 2018

Border Unicorn Festival

27 May 2018 @ 10:00 am - 1:00 pm
Albury Botanic Gardens, Cnr Dean St & Wodonga Pl
Albury, NSW 2640 Australia
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“The Border Unicorn Festival is to raise funds and awareness for Williams Syndrome – a rare genetic condition that my 3 year old daughter has. My daughter, Olive, has Williams Syndrome, a rare genetic condition affecting approximately 1 in 10000 Australians and characterised by many health issues and developmental delays. There are many symptoms that vary from person to person, but they each share a very social and friendly disposition and have a deep affinity with music. It is this…

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June 2018

2018 Dinner, WS Research Presentation and AGM

16 June 2018 @ 6:00 pm - 9:30 pm
Skinny Dog Hotel, 155 High St
Kew, VIC 3101 Australia
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2018 Dinner & Presentation & AGM Venue: Skinny Dog Hotel, Kew Age: 18+ (child-free) Sit down 2 course dinner (entree and mains) Drinks & dessert purchased separately Research findings presentation “The Perspective and Experience of Families Raising a Child with Williams Syndrome” Guest speaker: Rebecca Bobin In 2017, Rebecca approached our group for volunteers to participate in qualitative studies for her thesis on The Perspective and Experience of Families Raising a Child with Williams Syndrome. Rebecca has completed her thesis…

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