We are a community of families with Williams Syndrome members, based in Victoria, Australia.
We aim to provide help and support for families with a child or adult with Williams Syndrome and empower those with Williams Syndrome to reach their full potential.
We invite new families, supportive community members, sponsors and relevant health professionals to participate in the life of our group and apply for membership.
A new diagnosis
Every family who learns of a Williams Syndrome diagnosis has many questions. It is natural to experience a variety of emotions and not know who to turn to. Google is often a first point of reference which can be helpful, but can also be unhelpful. This video shares some first-hand experiences of families in our group.
Hello my name is Nicki Fry and I would like to tell you about some exciting things that have happened for me this year. Firstly my friend Taryn that I have known since we were both about 2 years old, came to our house last year and told me she was getting married. I...read more
Every family who learns of a Williams Syndrome diagnosis has many questions. It is natural to experience a variety of emotions and not know who to turn to. Google is often a first point of reference which can be helpful, but can also be unhelpful. This...read more
https://www.youtube.com/watch?v=00BhvagH66Q Check out Brodie from our group. He has done a video and live interview - super exciting! With the help of his Circle Of Support, Brodie has designed and fulfilled many dreams and desires, to work, study and live out of...read more
We have received some feedback from folks about the t-shirts and we're very excited to show you the final designs! We have decided to go without words around the logo to keep it nice and clean. The white t-shirts will have the pink logos and the navy...read more
Wednesday 3rd January We departed from McDonalds' Nunawading car park at 8 am before travelling through Yea, Bonnie Doon and then onto Wangaratta. We arrived at our accommodation at Howman's Gap Alpine Centre near Falls Creek. The day before we left I hurt my back...read more
A positive and insightful snapshot about how the support group can helps families and individuals with Williams Syndrome and the benefits of being in the group. Thank you to our sponsors; Genetic Support Network of Victoria and Rotary Club of Canterbury. Videographer:...read more
Presented by Our friends at Belonging Matters Inc. are hosting this workshop and it may be very useful for members and families in our group. Our own Justine is involved in this project to help families set up and strengthen their circles. When and Where Wednesday 7th...read more
Research findings: The Perspective and Experience of Families Raising a Child with Williams Syndrome
Rebecca Bobin Research Assistant La Trobe University Developmental Neuromotor Cognition Lab Rebecca Bobin is a Master of Clinical Psychology candidate and provisional psychologist within the Australian Catholic University. Rebecca completed her BPsych...read more
This is an introduction to Williams Syndrome and some of the families in the Williams Syndrome Family Support Group (Victoria) Inc. Thank you to our sponsors; Genetic Support Network of Victoria and Rotary Club of Canterbury. Videographer: Lars Vorlicek (CEK...read more
The skies were blue. The carpark was full. The sausages were sizzling and flying into the hands of happy patrons. We could not have asked for a better Saturday in October! It was a massive team effort from everyone involved and every aspect of the day exceeded all...read more